Today my husband had a carers' meeting. He didn't find it particularly useful and mainly discussed the care of our 8 year old with autism.
He did consent to both our children being referred to young carers. Our 5 year old on the basis he misses out, adapts his behaviour and suffers due to his sister's condition. Our daughter as my carer.
I'm furious. Perhaps that shows I don't understand the impact my illness has on them. I don't think that's true though. I more than most understand. She does not care for me. They do not know I am ill now I am home. I care for them. They have no extra responsibility and their opportunities are not reduced. If anything, by being off sick I am more available, I see them more, we play more, I'm at school more.
It's shaken me. Again I stand accused of ruining my children's childhoods. I'm left feeling that yet again my best efforts haven't been enough and feeling like I really can't keep on being reminded, being blamed, being responsible for this horrible part of our lives. Feeling that if this is how I am seen, remembered and known that I really don't see the point in living. This will never go away. My neighbours, my kids' teachers, my family, church and friends only seeing this, not me. Only remembering me as the mentally ill one who kept ending up being locked away.
This is now my reality.
Pretty much exactly 5 months after my last church attendance I returned today. Since my last time I had only seen 3 people from the congregation face to face. People who live in my town. Who I've seen at least twice a week for years, I'd seen so few of them. Children had grown. Newborn babies now starting to move. Barely bumps now earth side. There were a few new faces too. We decided to go today because we had been invited for Sunday lunch by a couple from church. The sweet, kind hearted, godly doctor who was on duty the weekend I was first taken to hospital. I didn't give myself a choice this morning. I'd set up an excuse not to go for lunch already. Our car was broken. It was true, it was, but I knew it would be fixed in time to go. So I got up and we went. I'd spoken with my counsellor about not feeling it was my home any longer. That I wasn't part of the fellowship anymore. That physically I didn't know where to sit. Our usual seats, middle,front, with ...
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