Today my husband had a carers' meeting. He didn't find it particularly useful and mainly discussed the care of our 8 year old with autism.
He did consent to both our children being referred to young carers. Our 5 year old on the basis he misses out, adapts his behaviour and suffers due to his sister's condition. Our daughter as my carer.
I'm furious. Perhaps that shows I don't understand the impact my illness has on them. I don't think that's true though. I more than most understand. She does not care for me. They do not know I am ill now I am home. I care for them. They have no extra responsibility and their opportunities are not reduced. If anything, by being off sick I am more available, I see them more, we play more, I'm at school more.
It's shaken me. Again I stand accused of ruining my children's childhoods. I'm left feeling that yet again my best efforts haven't been enough and feeling like I really can't keep on being reminded, being blamed, being responsible for this horrible part of our lives. Feeling that if this is how I am seen, remembered and known that I really don't see the point in living. This will never go away. My neighbours, my kids' teachers, my family, church and friends only seeing this, not me. Only remembering me as the mentally ill one who kept ending up being locked away.
This is now my reality.
Tomorrow is a new day, Full of new promises, When you rush through the day, Tomorrow is always there to say, Don't worry tomorrow it can be done, Tomorrow we can try again. Tomorrow's exciting promise, Every morning when you wake. A bit more time to finish today. More time to play They say Don't leave till tomorrow, Why you can do today. Sometimes tomorrow seems the same. Tomorrow is so different from today. No joy before you settle down, Tomorrow you'll still feel like you'll drown. What if tomorrow never came? What if today was the end. Would you regret the things you put off? Would you ponder if that phonecall, That text, that knock on the door, Shouldn't have been tomorrow's chore? Would you beg for another tomorrow? Would you mourn your yesterday. Today someone needs you. That phone call can't wait. A chat, a cuddle, a hand to hold, Responding may mean more than gold. So don't put it off, don't delay. Someone...
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